April 25, 2011
This organization has done so much to get funds for research, their fundraiser get better every year and more and more people are educated ,thru the fundraiser, on how devastating this syndrome is. We must every day work towards finding a cure and support the families, not in monetary means but most of all with the hope that one day there will be a cure
The Great!
I've personally experienced the results of this organization in...
I have helped in getting items for the silent auction
Ways to make it better...
If I had to make changes to this organization, I would...
get more people involved
MY ROLE:
Volunteer & volunteer.