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Steve Rivers

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Down Syndrome Network
June 21, 2010

Our middle son was born with DS and it was quite a shock. We were quickly introduced to a parents organization - Down Syndrome Network. We were impressed with the quality of the information and its members and joined the Board to help with growth and development. Since that time, DS Network has grown significantly and has secured the attention of many donors, healthcare providers and educatiors. The organization is building managerial depth and is poised for tremendous growth.

The Great!

I've personally experienced the results of this organization in...

Information packets and seminars, speaking engagements, networking and advocacy opportunities

More feedback...

How frequently have you been involved with the organization?

About every week

When was your last experience with this nonprofit?

2010

MY ROLE:
Board Member & Treasurer - 2003 to present.

Down Syndrome Network
May 15, 2009

When my son was born we were overwhelmed upon learning he had Down syndrome. DS Network helped us navigate through the maze of government agencies and paperwork to start early intervention therapy and provided a forum for discussing issues with other parent. We immediately got involved with the organization and it has since grown into a group that educates teachers and parents, maintains a medical and education directors and has ambitions of building a DS center in Arizona. It is the best organization I have worked with and has helped our family immensely. I am proud to be a part of this organization.

The Great!

I've personally experienced the results of this organization in...

the development of my son Casey (DS) through the sharing of ideas and expert testimony.

Ways to make it better...

If I had to make changes to this organization, I would...

I am part of the group that runs this organization. :)

More feedback...

What I've enjoyed the most about my experience with this nonprofit is...

The positive outlook that members have toward their challenges and the growth and development of the kids and adults with Down syndrome.

The kinds of staff and volunteers that I met were...

Professional caring and dedicated. The best!

If this organization had 10 million bucks, it could...

open a DS center to provide therapy and a forum for advancing the development of individuals with Down syndrome.

Ways to make it better...

We had more funding and were able to do more!

In my opinion, the biggest challenges facing this organization are...

Funding for our lofty goals

One thing I'd also say is that...

Our organization takes its fiscal and professional responsibilities seriously, spends very little on administration. It is run largely by caring parents and volunteers; however, because those parents have diverse skills we have a professional management and leadership team.

When was your last experience with this nonprofit?

2009

MY ROLE:
Board Member & Treasurer.