1p36 Deletion Support & Awareness
June 23, 2010
My wife and I have a 4 yr old son with 1p36 Deletion Syndrome. 1p36 Deletion Support & Awareness has been wonderful in providing both informational and emotional support. It is great to know that you have a family that you can talk to that can truly understand the things you are going through.
More feedback...
How frequently have you been involved with the organization?
About every week
When was your last experience with this nonprofit?
2010
MY ROLE:
Board Member & Helped establish 1p36 Deletion Support & Awareness as a nonprofit.