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Anonymous CDH Mother

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Breath of Hope Inc.
July 6, 2011

I have been a member of B.O.H .for 2 years now and I have contributed to this organization. While they did not help me personally in any form except a list serve, I nevertheless thought this a good charity and I trusted that Elizabeth Doyle Propst was a good leader.

Last week a law journal article about trademarks on CDH Awareness was bought to my attention and I felt compelled to read it. I was aware of the trademarks that Elizabeth filed and believed she was doing so to protect the intellectual property of the charity. I had more than one conversation with the staff at B.O.H. about this and was told that B.O.H. was being sued by C.H.E.R.U.B.S. and that members should not concern ourselves with such pettiness. I believed every word as truth and continued to support B.O.H. through contributions and social media.

After reading this article however, I am flabbergasted. I researched the related trademark papers on the government site and found that the journal article is not only true, but that I was blatantly lied to by Elizabeth and others at B.O.H. about the trademarks. I did more research and looked at both trademarks and what C.H.E.R.U.B.S. said about the situation. I found C.H.E.R.U.B.S. to be honest and forthright enough to provide families URLs to support the facts. In the past 2 years I have watched B.O.H. shushing any attempts by it's members to seek out facts or legal paperwork while condemning another CDH charity. The final straw was seeing a video on Facebook of a court case in which the president of C.H.E.R.U.B.S. had to get a restraining order against Elizabeth. After hearing Elizabeth's own voice lie under oath about harassing her I felt physically ill. I had heard rumors but Elizabeth has always been nice to me so I ignored them. I try hard to believe the good in people but often that makes me a fool, as in this situation.

Angered, I came here to search more information about both charities and found that B.O.H. spent $12,000 in 2009 in legal fees to keep the trademark while C.H.E.R.U.B.S. did not spend any funds. Were my donations used to pay this? What was spent in legal fees for 2010 and 2011?

I believed that B.O.H. was created to help CDH families and I wanted to be a part of that. Now I feel that it was just a tool for a vengeful woman to attack others. I cannot fathom the dishonesty and hatred I am witnessing in these papers and videos and it disgusts me. I am very angered and disappointed by this. It is reprehensible that a charity should hold trademarks over another charity this way and then lie to it's members and the public. I will not donate to nor support B.O.H. in the future. I will be filing complaints against B.O.H. and I should hope that the IRS does something to correct this behavior.

The Great!

I've personally experienced the results of this organization in...

I was a member for 2 years. I have a child born with Congenital Diaphragmatic Hernia. I hold honesty and integrity in very high regard and found that it to be severely lacking at B.O.H..

Ways to make it better...

If I had to make changes to this organization, I would...

A complete review of all finances and behaviors of this organization and it's leader. Refund all money to donors. A public apology to members, C.H.E.R.U.B.S. and the public. Complete disclosure of all legal paperwork of all cases.

More feedback

How would you describe the help you got from this organization?

A little

How likely are you to recommend this organization to a friend?

No

How do you feel you were treated by this organization?

Badly

How did you find this group?

Doctor referral.

What, if any, change in your life has this group encouraged?

I will not support another charity without researching first.

MY ROLE:
Client Served & I was a member for 2 years.

Review from Guidestar