June 22, 2011
I think this site is excellent. Catherine Poole the moderator is very informed and up-to-date on the latest treatments and research. She is also very kind, caring and supportive towards the patients and caregivers. I used this site almost daily after my brother, Wes, was diagnosed with Stage IV Melanoma in 2008. Catherine and the others on the site provided my family with wonderful information, support and encouragement. I will always take comfort in this.
The Great!
I've personally experienced the results of this organization in...
Yes, because this organization provided invaluable support, guidance and information to me when my brother Wes was undergoing various treatments for Stage IV Melanoma.
Ways to make it better...
If I had to make changes to this organization, I would...
I was somewhat disappointed that Catherine Poole wasn't as keen as I was on the cutting edge genome sequencing as I was. BUT I plan on having another conversation with her in light of the recent pulicity surrounding this topic. This however, is not at all a complaint, but just a matter of different information and experiences. I really cant think of any changes that are needed to the MIFF. As stated earlier I had only positive experiences.
MY ROLE:
Client Served & Spoke with other patients and caregivers on the MIF Forum Website.