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charleys mummy in uk x

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CHERUBS - The Association of Congenital Diaphragmatic Hernia Research
July 25, 2013

I live in the UK and chose to volunteer for Cherubs after receiving such wonderful support after the birth of my daughter with CDH. The previous Rep in the UK started her own charity up so I wanted to continue the good work that Cherubs do in the UK. It truly feels like a family. The fact everyone understands exactly the journey you are on helps enormously . Cherubs continue to give us support and it has been a journey that has had many ups and downs . Only a Cherubs member can explain to you how much they are needed and. Of the wonderful work they do in supporting families and Raising Awareness of CDH. Not just in 1 country but all over the world.

Ways to make it better...

If I had to make changes to this organization, I would...

Have it as a registered charity in every country.

More feedback

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2013

MY ROLE:
Volunteer

CHERUBS - The Association of Congenital Diaphragmatic Hernia Research
April 4, 2013

I've been a volunteer Rep for Cherubs for over 12 mths now. My daughter is a CDH "survivor" despite her surviving Cdh she has endured many struggles and continues to do so. The reason I volunteer for this wonderful Unique charity is because they supported us not only during our pregnancy but have continued to support us continuously. They are unique because as many have already said . Once you become a Cherubs member you enter into a family unit. It doesn't matter what depth of support you need or how much you donate every member is equally supported . I know what I have to offer is valued , I know the money I raise is used to help families on their Cdh journey and in research to help so in future there is hope that no other family endure this horrible condition . I'm about to jump out of a plane to raise much needed awareness & funds for Cdh. I've met other members , our siblings have met and are now life long friends too , with other children who understand their journey. There is no other like them . I'm not in the same country as their Head Quarters yet I feel so close to them . Thank you Cherubs & all members for all you do :) united we will conquer

More feedback

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2013

MY ROLE:
Volunteer

CHERUBS - The Association of Congenital Diaphragmatic Hernia Research
May 4, 2012

I am a mummy in the UK. We learnt our daughter had a LCDH at our 20 week scan back in 2009, our world crumbled as we were advised to terminate her. No way! We went home & hit the Internet and found Cherubs. It didnt matter that they were based in the USA. The support we received was from members all over the world. I shared my pregnancy with other mums and dads. We learnt that the outcome could go 50/50 . Nobody gave us false hope but supported me when I had melt downs whatever time of day. Having members all over the world meant 24/7 someone was on line to lift you up when you were in total despair.Our daughter was born March 2010 and did well. Stomach,bowels , intestines & spleen all up .At 5 days old she had a large gortex patch repair. Then open heart surgery at 15 days old to repair a coarctation of her aorta with pa banding. Cherubs members have been my saviour . Which is why I chose to become a volunteer for them here in the UK. They do such fantastic work Raising Awareness of CDH, Research and supporting those who find themselves on this journey. They have helped me Raise Awareness here in the UK. Our daughter recently had her PA band removed but during the open heart surgery suffered brain damage. She is now unable to eat, sit, walk or do any of the things she battle so hard at birth to learn to do. Cherubs continue to support us as we do them. No one forgets you, survivors & non survivors are treated the same . Its a family we feel privilaged to be a part of. 2 years on our support is just as strong. I only hope one day we get to meet Dawn and some of the amazing people who fight every day to have CDH recognised .We will continue to fight here in the UK as many members do all over the world. We cannot thank Cherubs enough for all they have done & continue to do. Cherubs has taught me always nothing is done for anyone individuals ego or showman ship! ITS FOR THE BABIES ! and if everyone thought this way the world of CDH woulld be a much better place. THANKYOU Cherubs xxxxx

More feedback

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2012

MY ROLE:
Volunteer

CHERUBS - The Association of Congenital Diaphragmatic Hernia Research
May 1, 2011

I am Mother to 13 month old CDH survivor.At our 20 week scan we learnt we were expecting a daughter but that she had Cdh.Very little information was given to us. At home we googled cdh and found Cherubs.Although we are in the uk & have a Cherubs here,nothing & nobody has ever given us more support than Cherubs in the USA and Dawn.Through this wonderful Mothers courage & determination to be heard on behalf of all our babies & in memory of her son Shane we have been able to cope through the last 2 years.I have a wonderful support network across the world.This has inspired myself & family to raise funds & awareness here in the uk. Dawn & the charity she works so hard to maintain with the help of volunteers are a true inspiration to many.From the uk i thank her wholeheartidly for always being there .

The Great!

I've personally experienced the results of this organization in...

the journey of my cdh surviving daughter.

Ways to make it better...

If I had to make changes to this organization, I would...

nothing

MY ROLE:
General Member of the Public & raised awareness through charity ball & other fundraisers in the uk.

Review from Guidestar