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Clifford Fry

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1 reviews

Review for International Rett Syndrome Foundation, Cincinnati, OH, USA

Rating: 5 stars  

IRSF is a U.S. organization. My daughter is 31 years old and has Rett Syndrome. I have benefited from this organisation for years as one served by it. IRSF is the organization that serves families dealing with Rett Syndrome in all kinds of ways. It provides direct help for families to communiate with each other (on the Rettnet), it is a major funder of research to cure Rett Syndrome, and it is hosts major conferences for researchers and familiies to share information.

Role:  Client Served & I am chair of the Familiy Advisory Board (in 20110 of IRSF. This is not the "Board" of IRSF, but a family committee. I have attended numerious conferenecs sponsored by IRSF and have raised funds for the organization.