My Nonprofit Reviews
Review for International Rett Syndrome Association, Cincinnati, OH, USA
IRSF is a U.S. organization. My daughter is 31 years old and has Rett Syndrome. I have benefited from this organisation for years as one served by it. IRSF is the organization that serves families dealing with Rett Syndrome in all kinds of ways. It provides direct help for families to communiate with each other (on the Rettnet), it is a major funder of research to cure Rett Syndrome, and it is hosts major conferences for researchers and familiies to share information.
I've personally experienced the results of this organization in...
communication, conferences, direct help inidentifying medical assistance,
If I had to make changes to this organization, I would...
This is a superbly run organization. It needs more funds, as the key to Rett Syndrome research is also the key to many other child development disorders. The Gene has been found for Rett Syndrome, making it a relatively rate opportunity for a cure.