CONGENITAL HEART DEFECTS FAMILIES ASSOCIATION
April 25, 2011
My son Eagan was born 8 weeks early by emergency c-section in Wichita, KS. Less than 4 hours later he was flown to Kansas City, MO to Children's Mercy Hospital for emergency open heart surgury. He has a condition called a 3rd degree heart block - he has a pacemaker and will have one for the rest of his life. CHD Families Association made my stay of 8 weeks with him so much nicer. The package they delivered with a blanket for him and a few necessities for me, made my day. My son still sleeps with his blanket almost 10 months later and it's one of my favorites as well. The people of CHD Families are warm hearted and inspirational making hard days of parents with "heart babies" so much better.
I've personally experienced the results of this organization in...
every aspect of my life. They are a wonderful support group, and there is always encouragement and answers to questions - no matter how silly I think the questions may be!
Ways to make it better...
If I had to make changes to this organization, I would...
Do nothing. They're wonderful.
Client Served & I donated out grown baby clothes to our local NICU. .