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wellspouse

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Well Spouse Foundation dba Well Spouse Association
October 4, 2010

The Well Spouse(tm) Association offers peer support to current or former spousal caregivers -- husbands, wives or partners of people with chronic illness and/or disability. As such our goal is to help spousal caregivers offer the best care and support they can to their ill spouse. Where disease orgs offer tips and tricks for caregivers, we offer them motivation -- the glue that helps each one stick to their own personal mission to promote the help of their ill spouse, by paying attention to their own physical, mental and emotional health. And because the intimacy relationship is so much stronger than other family relationship, spousal caregivers need an organization especially for them -- and their ill spouses, friends and family can help the cause of promoting family health for both members of the couple, by urging the spousal caregiver to join the Well Spouse(tm) Association.

The Great!

I've personally experienced the results of this organization in...

the support I've received from other spousal caregivers, as I've had to deal with the "elephant in the room" -- chronic illness -- with two spouses.

Ways to make it better...

If I had to make changes to this organization, I would...

help it to become better known to friends, family, professional caregivers and the general public -- as the go-to group for husbands, wives or partners of persons with chronic illness and/or disability/

More feedback

What I've enjoyed the most about my experience with this nonprofit is...

There is great camaraderie amongst the more experienced volunteers, and empathetic support for "newbies," who often come to us in great distress.

The kinds of staff and volunteers that I met were...

Friendly and caring, who had "Been there, done that," and were ready and willing to lend an ear / give support.

If this organization had 10 million bucks, it could...

- Hire an Executive Director - Set up a paid (nonorarium) volunteer coordinator in every state - Recruit many more volunteers, and some paid staff to supervise their efforts. - Build a supportive financial donor base - Provide paid respite care

Ways to make it better...

More coordination of volunteer effort is needed.

In my opinion, the biggest challenges facing this organization are...

Raising awareness amongst spousal caregivers, their friends, family, workmates and the general public

One thing I'd also say is that...

Among family caregivers, spousal caregivers are the last to self-identify. We need to change this, so that everyone thinks of support for the spousa or partner, as well as for the ill person.

How frequently have you been involved with the organization?

About every week

When was your last experience with this nonprofit?

2010

MY ROLE:
Board Member & I have been a well spouse and volunteered with this organization since 2000.