April 17, 2011
In 2007, our 4th son was diagnosed with Trisomy 18 prior to deliver. After the delivery, we had to have hospice before we could leave the hospital. We had wonderful a hospice nurse and child life specialist that also voluntered with Camp Sol. My sister worked at Children's so she was familiar with others that voluntered with Camp Sol. After our son passed away after 14 amazing days, we were on our own to figure things out as to feeling "normal" again. As the holidays approached, we received information about Camp Sol's holiday gathering. We went and felt very reassured that our "normal" was okay. In March of 2008, our family went to our first Camp Sol camp. The experience was amazing. We have tried to go every year since and to the other events which my children refer as "fake Camp Sol" They refer the overnight as the real Camp Sol and are so excited when they see the envelope in the mail. Now, we have a legacy child that will have an opportunity to feel like he knew his brother, also.
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like for it to become a national organization and reach more in other cities.
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MY ROLE:Client Served & My family received counseling services.