March 22, 2011
This organization helps families that have been touched in some way by the birth defect Congenital Diaphragmatic Hernia through support, awareness and ideals. They are like family but never pushy or unattainable. Their website, facebook page and Yahoo.group page are sources of continued support where someone will be there for you, a lot of the times it doesn't matter the time of day, a member is there to listen. They have a huge list of helpful material they give away and are a haven in a storm of confusion and fear just when you need them.
The Great!
I've personally experienced the results of this organization in...
In January 2007, during a routine 20 week ultrasound, it was discovered that my ninth child had CDH(Congenital Diaphragmatic Hernia) when I got home after the appointment and started research on this defect, the majority of what I found was a: out of date and b: depressing and felt unwelcoming until I found a lady facing a similar situation as me and mention she found this website called Breath of Hope. I checked them out and felt an instant attraction. And since then I have been a member
Ways to make it better...
If I had to make changes to this organization, I would...
As far as changes, the only real change would be not to have a need for an organization as this but there is a need so I would say then more personal face-to-face meetings with others facing the same challenges would be nice.
MY ROLE:
Client Served & I came in as a member in 2007, was on the board for about a year and am still active with them.