MESOTHELIOMA APPLIED RESEARCH FOUNDATION INC
July 24, 2009
The Mesothelioma Applied Research Foundation (MARF) or Meso Foundation as it is commonly known looks after the interest of patients and families that are victims of this deadly but preventable disease. As there is virtually no research funded by the government or by any other groups the available treatment arsenal hasn’t changed much over the last 30 years contrary to the progress seen in eg Breast, Colorectal, Non-Hodgkin’s lymphoma, and Multiple Myeloma to mention just a few malignant diseases that have seen the impact of newer treatment modalities.
The other side of Mesothelioma is the money, due to the asbestosis litigation which makes every patient a potential gold mine for those few law firms that are selected to represent the patient. Thus, there is a lot of advertisement from respectable and less respectable trial attorneys trying to attract a potential client.
For a person with a newly diagnosed deadly malignant disease, with a name you can hardly pronounce, it’s not an easy task to navigate the turbulent waters of the excessive but not always necessary information flow. No wonder patients and families feel lost and confused in a time of significant stress and chock.
MARF was founded to be a non-biased support group, initially helping patients with the information flow, supporting patients who can ill afford to travel for a consultation with the few and far apart clinical experts, supporting the family in difficult times and not least trying to find money for the much needed basic and clinical research, compensating for all the lost ground that the years of neglect and ignorance has caused. The Meso Foundation has as it’s ultimate long term goal to find the tools that will cure the disease and to work with other organizations to find ways to eradicate this preventable disease.
As an Oncologist, Clinical Research Physician and Scientist working within the Meso Foundation finding a way to make the public, the medical community and the “government” aware and engaged in taking on the fight against Mesothelioma and reaching out to the many patients and families that are victims of this deadly but preventable malignant disease to help and support them is a noble and important task.
I call on you to help me/us in doing the same, we are long overdue with dealing with this disease and you can make the difference.
I've personally experienced the results of this organization in...
Awarding Research Grants resulting in publications in Peer Reviewed Scientific Journals
Ways to make it better...
If I had to make changes to this organization, I would...
Just continue what it set out to do, ther is so much more we can do to take the fight to the next level.
What I've enjoyed the most about my experience with this nonprofit is...
It's the only organization dealing with this deadly but preventable disease where Patients, Families, Attoneys and Medical Doctors come together and work for the same goal hand in hand
The kinds of staff and volunteers that I met were...
great, they had insight, understanding and were engaged in a way that made you want to be one of them
If this organization had 10 million bucks, it could...
Do mucvh more, but 10 million dollar would only pay for 2 clinical trials where we may need 20 trials to make headway.
Ways to make it better...
there were more of us!!!!!
In my opinion, the biggest challenges facing this organization are...
Public ignorance, lack of donations due to the recession and loosing advocates due to the disease taking its toll
One thing I'd also say is that...
I or you could be the next victim tomorrow so we all have an interest to see that there is an influx of resources to understand, finding and getting drugs approved to treat and cure patients with Mesothelioma
When was your last experience with this nonprofit?
Board Member & Initiating clinical studies in Mesothelioma.