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Eileen

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CENTER FOR BIOLOGICAL DIVERSITY INC
April 8, 2010

This group has accomplished a great deal in protecting wildlife and their habitat by taking their issues to court. I salute them on their accomplishments and strongly support them.

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If this organization had 10 million bucks, it could...

Win more lawsuits, mount more campaigns and advertising. Could also spend money on restoring habitat rather than law suits.

How frequently have you been involved with the organization?

About every week

When was your last experience with this nonprofit?

2010

MY ROLE:
General Member of the Public & respond to their various email action letters.

The Oral Cancer Foundation
July 24, 2009

As a two time SCC oral cancer survivor diagnosed in 1997 and 2001, I can tell you I know the fear of going this road alone as there were no support groups out there for this kind of cancer. I joined the OCF in May of 2001 and have been seen the help that this charity brings to both patients and caregivers and their families. It has even managed to save a few lives but stopping a caregiver from cutting pain patches or getting someone to the ER in time. Here are a group of compassionate, well informed people who have been down this road and are willing to help you on your journey. Besides the marvelous forum, there is a large resource section on the web site wityh information on oral cancers, its treatment, side effects, dental issues, best hospitals, etc. and two search engines to help you fins what you need. There are lasting cyber friendships formed on the forum and the emotional suppsort is beyond my words. I never knew how much my cancer had affected my husband until we flew to Vegas to meet twenty some other patients and caregivers. He came home knowing he wasn't alone in his fears abd feelings and a much calmer man. Meanwhile, the founder of this charity, is out beating the bushes at conferences and government agencies to get better funding for this cancer and to get the word out that 'EARLY DETECTION SAVES LIVES'. One of the best charities going.

The Great!

I've personally experienced the results of this organization in...

helping both caregivers and patients through this horrible journey by sharing information on side effects, both emotional and physical.

Ways to make it better...

If I had to make changes to this organization, I would...

I would hire or find an effective fund raiser to find a corporate sponser to pay for the website. Many of the expenses of this charity are funded by the founder.

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What I've enjoyed the most about my experience with this nonprofit is...

is being able to help others from my experience. If I can at least that fear of the unknown, I feel I have helped.

The kinds of staff and volunteers that I met were...

most dedicated, compassionate I know. They are also very well informed.

If this organization had 10 million bucks, it could...

sponser more research into causes and cures. So many oral cancer patients die unnecessarily because they are misdiagnosed. With HPV now a facter and even teens having oral cancer, doctors need to realize this is no longer an old man's disease.

Ways to make it better...

had this organization existed whne I was diagnosed.

In my opinion, the biggest challenges facing this organization are...

fund raising.

One thing I'd also say is that...

It is too bad that all cancers do not have a website like this. The forum format is the best I have seen. Sites like this should receive some government funding.

When was your last experience with this nonprofit?

2009

MY ROLE:
Volunteer & I read the forum almost daily and post if I think I can help someone. Also answer private emails.