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The Oral Cancer Foundation
July 24, 2009

I was diagnosed with tonsil cancer in 2007. Before the tumor was removed, no one thought it was cancer. In my rural area, oral cancers are not that common and as a 48 year old, non-smoking, healthy female, I was stunned. Who the heck has ever heard of tonsil cancer?? Even today new doctors will ask me how on earth did I manage to get tonsil cancer. Shortly after my surgery, I found the Oral Cancer Foundation. What a wonderful source of information. I read as much as I could and began posting my questions on their forum. I learned many heathly non-elderly, non-smoking people get oral cancer. The tips and tricks I learned helped me support a speedy recovery. My focus on getting better was reinforced everyday and I never gave up hope. I knew exactly what to expect and how to best deal with my recovery. My husband often read over my shoulder. Without the OCF I would have been confused, angry, unprepared, and potentially had a different outcome (certainly I would have required a feeding tube). This is a great organization!

The Great!

I've personally experienced the results of this organization in...

my positive attitude and recovery. According to my doctor, I was an "ideal patient" because I was well informed.

Ways to make it better...

If I had to make changes to this organization, I would...

be very proud.

More feedback

What I've enjoyed the most about my experience with this nonprofit is...

the opportunity to "meet" many wonderful people from all walks of life.

The kinds of staff and volunteers that I met were...

the best of the best.

If this organization had 10 million bucks, it could...

support early detection. I waited 4 months before getting an evaluation because I was uneducated (as was my dentist).

Ways to make it better...

I didn't get cancer!

In my opinion, the biggest challenges facing this organization are...

getting the recognition and support needed to help a growing population.

One thing I'd also say is that...

I am very grateful for OFC.

When was your last experience with this nonprofit?

2009

MY ROLE:
General Member of the Public & Visited the site on a daily basis during my cancer treatment & recovery.