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The Oral Cancer Foundation
April 11, 2013

I've never seen a charity do more with less. The minimal staff and passionate volunteers made a personal difference with me when I was struggling with the diagnosis. So little information was out there about a relatively unknown disease and this website was flush with information for both patients and caregivers. Their support board is unparalleled with questions answered 24/7. Their efforts in the area of awareness and outreach are outstanding. I don't know where I would have turned without them.


More feedback

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2013

MY ROLE:
Client Served

The Oral Cancer Foundation
July 21, 2009

I was diagnosed with oral cancer in March 2007. Prior to my diagnosis, I had heard nothing about oral cancer and didn't know it existed. With critical decisions to make, I trolled the web looking for reliable information and finally came across this site and it's marvelous boards post surgery. What a wealth of information I found while lurking and reading the boards. I was impressed with the knowledge of the survivors who were quick to share experiences with treatment, decision making and daily challenges. I was impressed with the caregivers who came to share ideas and support. I was impressed by the dentists and other medical personnel who explained, translated and helped patients wind through treatment. No question was too small, no poster belittled. It was and continues to be today the greatest source of information and support for oral cancer survivors, patients and those awaiting diagnosis. For a relatively rare cancer on the rise, this site is essential tool and resource for us all that provides the best support with the smallest of financial expenditures. Beyond what it does for current patients, the oral cancer foundation does much to promote prevention and early detection. You can't get more bang for your charity buck anywhere else.

The Great!

I've personally experienced the results of this organization in...

awareness and most importantly support for patients and caregivers. Their ability to provide reliable information and understanding is second to none.

Ways to make it better...

If I had to make changes to this organization, I would...

ensure more people were aware of its existence.

More feedback

What I've enjoyed the most about my experience with this nonprofit is...

the respect it demonstrates for all participants on the board and the quick feedback people get.

The kinds of staff and volunteers that I met were...

top notch.

If this organization had 10 million bucks, it could...

reach more people struggling with this disease while making more people aware of the importance of early detection.

Ways to make it better...

I had discovered this site prior to my treatment.

In my opinion, the biggest challenges facing this organization are...

getting more financial support for the great work they do.

One thing I'd also say is that...

the people who work in this organization work incredibly hard to make sure both compassion and accuracy are first and foremost.

When was your last experience with this nonprofit?

2009

MY ROLE:
Client Served & Had the best support from the boards.