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The Oral Cancer Foundation
July 20, 2009

The Oral Cancer Foundation's website is full of information for oral cancer patients and their caregivers. Its founder, Brian Hill created a place where questions can be asked and support is shared. This is especially helpful to newly diagnosed patients who face fear and uncertainty. Its a very scary time and so many do not understand all the medical jargon and knowing which doctor does what. The Oral Cancer Foundation has saved my life. I found the site right after I was diagnosed with my first round of cancer. The forum members embraced me and helped me thru my treatments. They were there with me when I had my first recurrance less than a year later. The same warm, caring, knowledgable people are still there helping me now with my thrid round of cancer. I have met many of these special people in person and am proud to call them my friends. One story that shows how wonderful a site OCF is. A woman joined and said she did about 10 or her radiation treatments and couldnt continue due to the severe side effects. This woman had several young children that depend on her. Jointly thru encouragment and examples we got her to return to her treatments. She was so touched by all the responses and kindness of strangers she went back to finish her radiation.

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The Great!

I've personally experienced the results of this organization in...

more people knowing about this type of cancer. New members finding help and finishing their very difficult treatments.

Ways to make it better...

If I had to make changes to this organization, I would...

not change one thing. Brian Hill has created a wonderful organization that helps so many and spreads correct info about oral cancer.

More feedback

What I've enjoyed the most about my experience with this nonprofit is...

the forum gives so much support to people who need help.

The kinds of staff and volunteers that I met were...

the best people in the whole world. They are so kind and caring and reach out to help others when they need a hand.

If this organization had 10 million bucks, it could...

help find a cure for oral cancer and make doctors and dentists aware of what to look for. All patients would be checked when they have a dental exam or even a physical.

Ways to make it better...

there was more money dedicated to helping OCF and oral cancer patients. Of course the ultimate goal would be to cure this disease so others wouldnt suffer.

In my opinion, the biggest challenges facing this organization are...

not enough money.

One thing I'd also say is that...

OCF is the best place for any oral cancer patient to find help and info.

When was your last experience with this nonprofit?

2009

MY ROLE:
Volunteer & I help greet new members and give them info about feeding tubes, nutrition and emotional support.