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Ann R.

447 profile views
3 reviews

Review for CYSTIC FIBROSIS RESEARCH INC, Palo Alto, CA, USA

Rating: 5 stars  

I have belonged to CFRI for 34 years and am totally impressed at the CF research they fund and their ability to support CF families, CF patients and CF healthcare providers. Their annual CF Education Conference is fantastic with doctors, researchers and psychologists presenting the latest information on cystic fibrosis research and care. CFRI is here for the CF community. Please come to the CFRI Conference August 2-4 at the Sofitel in Redwood Shores, CA to learn all about CF and how to care for our CF children and adults.

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2013

Role:  Volunteer

Review for CYSTIC FIBROSIS RESEARCH INC, Palo Alto, CA, USA

Rating: 5 stars  

My husband and I have been members of Cystic Fibrosis Research, Inc. (CFRI) for 34 years. It is a wonderful organization that funds outstanding CF research and provides education and support for families having CF children and adults with CF. CFRI has an excellent annual National CF Education Conference each summer and publishes an outstanding newsletter four times per year. CFRI in partnership with Stanford University has a monthly Discovery Series which is are talks given by doctors, research coordinators, scientists and CF patients; these talks are broadcast online over the Web for all to hear and call in to ask questions. In the past I have served as Board President, Executive Director and have Chaired the Mother's Day Tea, a major grassroots fundraising effort. My husband has served as Board President and is a Member of the Research Advisory Committee. We highly recommend CFRI to anyone interested in cystic fibrosis research and education. Ann Robinson

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2012

Role:  Volunteer

Review for CYSTIC FIBROSIS RESEARCH INC, Palo Alto, CA, USA

Rating: 5 stars  

I have been a volunteer for CFRI for 32 years and know that the organization is doing an excellent job educating parents, CF patients and care givers about cystic fibrosis. I have helped raise money by participating in the Mothers' Day Tea and special gifts campaign as well as served on the CFRI Education Conference. Our son who is 33 years old is doing well in spite of having CF; he is working full time, owns his own home. We attribute his many successes to the education we received at CFRI. Being personally involved with other CF families has been most rewarding and funding top quality research is such a worthwhile commitment.

Role:  Volunteer & When our son was born with CF, I changed my career from being an art instructor and freelance artist to non-profit management and fundraising. I've helped CFRI by chairing fundraisers and the CFRI National Education Conference.