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MESOTHELIOMA APPLIED RESEARCH FOUNDATION INC
July 11, 2009

MARF brings patients & families from the dark pit of no knowledge about a diagnosis of mesothelioma into the light of hope & treatment! Most patients diagnosed with meso are told there's no effective treatment available. There is & MARF has the connections to it! They have a talented, tuely caring nurse/practioner to work with patients & their families. The best specialists for this terrible cancer can be found through MARF. My daughter is a survivor & I am now a volunteer offering support where & how ever I can. I also advocate for awareness about asbestos & mesothelioma. The MARF staff genuinely care for their cause & the people they help. They do a great job of funding research to find better treatments &, hopefully a cure. The on-line community formed on the MARF web site really care for each other & offer hope, support, knowledge, comfort, & love. Everyone with a horrific illness like meso should be so lucky as those who find this foundation! Whether or not my cancer recurs I will continue to work as a volunteer & stay connected to my MARF "family".

The Great!

I've personally experienced the results of this organization in...

patients lives saved who were told elsewhere that no treatment for mesothelioma was available.

Ways to make it better...

If I had to make changes to this organization, I would...

try to advertise more so that more mesothelioma patients found this foundation.

More feedback

What I've enjoyed the most about my experience with this nonprofit is...

the differences made in peoples lives when they realize that there is hope.

The kinds of staff and volunteers that I met were...

knowledgable, proffesional, dedicated, & caring.

If this organization had 10 million bucks, it could...

advertise to reach more patients & fund more research projects.

Ways to make it better...

I could find better ways to raise funds so that more research projects could continue.

In my opinion, the biggest challenges facing this organization are...

fund raising to continue the search for better treatments & a cure.

One thing I'd also say is that...

the government needs to ban asbestos & fully fund mesothelioma research, all things that MARF works to make happen.

When was your last experience with this nonprofit?

2009

MY ROLE:
Volunteer & support for patients/families, advocate for awareness.