GreatNonprofits: Find non-profits and charities to review, donate, or volunteer.

Oops! You must enter a search term greater than 3 characters.

NStuckert

NStuckert - charity reviews, charity ratings, best charities, best nonprofits, search nonprofits
250 Profile Views
2 Reviews

Login to send private message
Click here to get your favorites badge.
CYSTIC FIBROSIS RESEARCH INC
November 20, 2012

In 1961, I was the parent of eighteen month old twins and told they had a very serious and generally fatal disease. Naturally all I wanted was a cure for Cystic Fibrosis for them. Fortunately they continued to survive. In 1974 the name alone, Cystic Fibrosis Research, Inc. called me to join the newly formed volunteer group raising funds for CF researchers. That was how I could help!

Throughout thirty-eight years CFRI has continued its mission raising funds for peer reviewed CF research and education of the public, parents, and patients (who now may reach the median age of thirty-seven plus). Via newsletters, meetings, annual three day conferences with CF medical expert
speakers, .a summer retreat, devoted office staff and volunteers, CFRI keeps us up to date on all things pertaining to relevant issues and CF research.

And, YES, I'm proud to have been a member of Cystic Fibrosis Research Inc. all these years.

May the cure be found soon..

Sincerely,
Norma L. Stuckert

More feedback

Was your donation impactful?

Definitely

How likely is it that you would recommend that a friend donate to this group?

Definitely

How likely are you to donate to this group again?

Definitely

When was your last experience with this nonprofit?

2012

MY ROLE:
Donor

CYSTIC FIBROSIS RESEARCH INC
February 24, 2011

From the creation of CFRI by a group of volunteer parents of cystic fibrosis children in 1975 to its present combination of volunteers, office staff, C.F. parents, patients and friends I have been proud to be a member.

The Great!

I've personally experienced the results of this organization in...

Peer review and CFRI approval of our research funded contributes to my pride and gratefulness for all who have contributed so much time, efforts and of course money to our CFRI.

Ways to make it better...

If I had to make changes to this organization, I would...

None

MY ROLE:
Donor & My heartfelt goals to fund research to find a C.F. cure (my two children died due to C.F.) and to fund and foster education through CFRI's outreach programs-newsletters, meetings, conferences, camp, and to answer direct personal C.F. concerns for all thro.

Review from Guidestar