February 17, 2011
SADS- terrible name, great cause, wonderful people-- provides information that is life-saving (literally). Hardly anyone knows about arrhythmia conditions, even doctors are astoundingly ignorant. And people with the condition have only piecemeal information. so when someone is struck down, everyone says, oh, if I had only known, why didn't anyone tell us about this? This small grass-roots organization is the only one I know of that is trying to get the word out, to save lives. I attended a workshop after I survived a mild attack of arrhthmia and was diagnosed with one of the rarer forms--most people don't live thru it. I feel like I was spared so I could help my extended family who are now able to take steps to prevent dying from this--but I did not know what to do until SADS laid it all out, how to approach them and what needed to be done. This is such a hidden danger, and SADS is about the only thing exposing it so we can deal with it.
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MY ROLE:Client Served & got advice about spreading word to relatives who might also be subject to arrhythmia disease.