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alive2tell

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SADS (Sudden Arrhythmia Death Syndromes) Foundation
February 17, 2011

SADS- terrible name, great cause, wonderful people-- provides information that is life-saving (literally). Hardly anyone knows about arrhythmia conditions, even doctors are astoundingly ignorant. And people with the condition have only piecemeal information. so when someone is struck down, everyone says, oh, if I had only known, why didn't anyone tell us about this? This small grass-roots organization is the only one I know of that is trying to get the word out, to save lives. I attended a workshop after I survived a mild attack of arrhthmia and was diagnosed with one of the rarer forms--most people don't live thru it. I feel like I was spared so I could help my extended family who are now able to take steps to prevent dying from this--but I did not know what to do until SADS laid it all out, how to approach them and what needed to be done. This is such a hidden danger, and SADS is about the only thing exposing it so we can deal with it.

The Great!

I've personally experienced the results of this organization in...

workshop

Ways to make it better...

If I had to make changes to this organization, I would...

Make it GROW

More feedback

How would you describe the help you got from this organization?

A lot

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2011

MY ROLE:
Client Served & got advice about spreading word to relatives who might also be subject to arrhythmia disease.