GreatNonprofits: Find non-profits and charities to review, donate, or volunteer.

Oops! You must enter a search term greater than 3 characters.

Karl

Karl - charity reviews, charity ratings, best charities, best nonprofits, search nonprofits
144 Profile Views
2 Reviews

What I want to do

See Pulmonary Fibrosis Research Enhancement Act Passed this year.

What matters to me

Living the best Life.

What inspires me

My family.

El Paso, TX USA

Login to send private message
Click here to get your favorites badge.
PULMONARY FIBROSIS ASSOCIATION OF TEXAS INC
April 10, 2013

Pulmonary Fibrosis Association of Texas has helped me whenever I have questions, need support, want to advocate for legislation to improve, promote, create awareness to the public, legislators, health care providers, doctors and family members. Time is now to reintroduce Pulmonary Fibrosis Research Enhancement Act contact you House of Representatives, Senators, anyone and everyone. Pulmonary Fibrosis literally TAKES YOUR BREATH AWAY. Sadly PF was cited as a disease to be included in funding, however it was not included when final funding was approved. Houston is the opposite side of Texas from where I live in El Paso. One person will make a difference, everyone together wil be the difference. Thank You, Karl Kingan P.S. PF has no cure no treatment no funding and is a progressive disease with the only hope of living each day to the best of your ability everyday realizing that limits to what you can and can not do are our future for tose of us who have this disease and those that will be diagnosed in the futuree unless funding is found to at least find some to halt if not reverse the progressive scarring of the lungs which occurs. If you have Idiopathic Pulmonary Fibrosis at best your life expectancy is 5 years. Some live longer other people die sooner. Take a DEEP BREATH and realize how precious it is to be able to breathe.
WE WHO HAVE PULMONARY FIBROSIS TRY OUR BEST TO MAKE THE MOST OF EACH PRECIOUS BREATH.

More feedback

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2013

MY ROLE:
Client Served

PULMONARY FIBROSIS ASSOCIATION OF TEXAS INC
January 26, 2011

Diagnosed with scarred lungs April 17, 2010 after having tests done by my Pulmonologist, this is where I go to information, support others, share my stories hopes nad concerns. My doctor said to wait six months. I was glad to hear that their response was SIX MONTHS!!!!! My goodness I said WhazUp indeed. They have offered to help support encouragement and to help me get a second opinion. i want to start a Pulmonary Support group here in El Paso, Texas with teir help.
Help to pass the Pulmonary Fibrosis Research Enhancement Act contact your Senators & Congressmen/women. pulmonary disorders are the third largest cause of death in the United States.

The Great!

I've personally experienced the results of this organization in...

Help received and gratification of helping others.

Ways to make it better...

If I had to make changes to this organization, I would...

Start an El Paso Chapter of this organization here in El Paso, Texas.

MY ROLE:
Client Served & I am sending my records for a second opinion.