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Celiac Sprue Association USA, Inc.
December 14, 2010

I was diagnosed with celiac disease in the early 1940s. I discovered the Celiac Sprue Association in the 1980s and joined immediately. The organization has been a tremendous help in my disease education as well as member support. I joined the board in the early 1990s and have never worked with a group of more dedicated people. The organizations primary goal is to help create a better life for those with celiac disease and related illnesses and sensitivities. The organization has over 130 chapters, 140 Resource units and approximately 7-8.000 members world wide. It is the largest member based celiac organization in the United States.

The Great!

I've personally experienced the results of this organization in...

Definitely, see above.

Ways to make it better...

If I had to make changes to this organization, I would...

Work towards increasing the organizations fund raising ability to further help celiacs everywhere.

More feedback

Will you volunteer or donate to this organization beyond what is required of board members?

Definitely

How much of an impact do you think this organization has?

Life-changing

Will you tell others about this organization?

Definitely

How did you learn about this organization?

by accident

What is this organization's top short-term priority?

Assuring truly gluten-free products for all celiacs in the U.S.

What is its top priority in the long run?

To be the best celiac support organization for our members anywhere in the world.

When was your last experience with this nonprofit?

2010

MY ROLE:
Board Member & Currently, I am the president and a resource unit.