PULMONARY FIBROSIS ASSOCIATION OF TEXAS INC
December 9, 2010
My Mom was diagnosed with PF in 2002, at the time there wasn't any information out there for her other than this is a disease that is going to take her life with in 2-3 years. We have been blessed she is still with us and has formed this non-profit with the help and support of many other patients. PFAT isn't just raising awareness but it is providing an extra breath for patients who would have otherwise suffocated. Other non profits are doing great work raising awareness for the disease but to my knowledge are doing very little for those with it. I am extremely proud of my Mom, who has been terribly ill but manages to push through her illness to help those less fortunate who cant afford oxygen or are new to the disease and have endless questions as we had when she was diagnosed. Now there is some place they can go for information. I thank God for the patients and family members of those who are no longer with us for donating there time to form this non profit organization.
I've personally experienced the results of this organization in...
I have seen first hand the results of PFAT through the eyes of patients who have received information, advice, oxygen, etc from the association. Some patients need O2 others just need someone to talk/listen to. Mom has always been there to answer the medical questions and console the family members when they ask "why us?"
Ways to make it better...
If I had to make changes to this organization, I would...
I wouldn't know how to improve this organization. It is doing a fantastic job, patients are getting the help they require
Would you volunteer for this group again?
For the time you spent, how much of an impact did you feel your work or activity had?
Did the organization use your time wisely?
Would you recommend this group to a friend?
When was your last experience with this nonprofit?
Volunteer & I help with the events and marketing for the association.