I've personally experienced the results of this organization in...
This organization is helping to get my family and myself the government funding for major research on a very serious and life-destroying disease. I voluntered to help with PANDORA and the ME/CFS Worldwide Patient Alliance because of the steller reputation of the organization and the people behind the organization. Millions would have continued to be sick without PANDORA's constant efforts to help all of us. PANDORA has given a major presence to all of the invisible sick who are bedridden, housebound.
Ways to make it better...
If I had to make changes to this organization, I would...
Get them more funding to continue to do the many things that they are involved in. Millions of people depened upon PANDORA to help them as individuals. Millions more depend upon PANDORA to get the governments to do their jobs and get funding for critical research that affects every single person worldwide.
Would you volunteer for this group again?
For the time you spent, how much of an impact did you feel your work or activity had?
Did the organization use your time wisely?
Would you recommend this group to a friend?
What one change could this group make that would improve your volunteer experience?
There are NO changes that I would make to this group. It operates in the most effective manner I have seen as a non-profit or a for-profit. Again, this organization is a model for all other non-profits.
Did your volunteer experience have an effect on you? (teaching you a new skill, or introducing new friends, etc.)
My volunteer experience has had a profound effect on me. I was given a way to help get funding for critical research, clinical trials, and public promotion. This gave me "power" and a voice in getting what is needed for the disease that both my husband and I share. The people associated with PANDORA are all the most decent, kind, caring and super bright, hard-working and effective people I have encountered. I have made real friends and this has helped me not to feel so isolated and alone. I have a purpose even though I am terribly sick. This need for being "of value" and having a purpose is part of being a human. We need to be needed and we want to be a part of something important and that helps many other very sick people. Also, trying to do fundraising and having to communicate has in fact helped my brain (I have severe brain damage). PANDORA has given me and many people like me a real sense of purpose. We know we are making major changes that help countless millions of terribly sick people - many of whom are in dire shape, living on the streets, without and medical care, and are at the point of suicide. PANDORA and Marla Silverman have literally stepped in and stopped those at the end and without hope - lives have been saved and many more lives will be bettered and saved.
How did this volunteer experience make you feel?
This volunteer experience has been wonderful for me. Again, I am useful and have a purpose even as a very sick person with severe cognitive problems. It does not matter that I am so very physically and mentally limited. PANDORA and the staff are gentle, calm and patient with me and others as we all try to do our volunteer work. This aspect of being careful and concerned about your volunteers is important and many non-profits seem to forget this aspect. Those that volunteer for a non-profit also need help and support so that they CAN volunteer. I and many other people continue to volunteer for PANDORA and their causes on an almost daily basis. That is rather telling. We STAY with this non-profit because we fervently believe in what it is doing and can actually see all the work being translated into very real good.
When was your last experience with this nonprofit?