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Martinez

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KENNEDYS DISEASE ASSOCIATION
November 19, 2010

As a retired otolaryngologist, and a patient of Kennedy´s disease, my contact with Kennedys association has made me start as an informer, of this rare disease, within, my friends, neurologists.

The Great!

I've personally experienced the results of this organization in...

Thanks to their information, we obtained, the clue to know the source (surname) involved in the transmition of the abnormal gene

Ways to make it better...

If I had to make changes to this organization, I would...

Try to promote similar organizations in all the countries with patients involved

MY ROLE:
Volunteer & Contact with the neurologist incharge of patients with abnormal muscular movements.

Review from Guidestar