PATIENT ALLIANCE NEUROENDOCRINEIMMU DISORDERS ORG FOR RESECH & ADV INC
October 31, 2010
I am a 49 yr old wife and mom, who has been disabled with ME/CFS/FMS/Lyme for 15 yrs. My family has been affected with numerous NEI illnesses. It’s important to me and my family that P.A.N.D.O.R.A. gets the support it deserves.
Marly Silverman, founder of P.A.N.D.O.R.A. is the most committed NEI advocate I’ve ever met. I finally met her for the first time in Washington, DC at the October 2010 CFSAC Committee Meeting. Her work to create the NEI Center in NJ is inspiring. She has been instrumental in the returning of Ryan Baldwin home and helping his family raise money for the enormous legal and medical bills.
P.A.N.D.O.R.A. has created the MCWPA (ME/CFS Worldwide Patient Alliance), which is a volunteer patient organization, primarily aimed at raising funds for a major ad campaign.
I am personally grateful for the service P.A.N.D.O.R.A. provides.
I've personally experienced the results of this organization in...
In a matter of a few months over a thousand supporters and $8,500 have been raised for the MCWPA on FB Causes! Patients and their families want to make a difference; it's inspiring!
Ways to make it better...
If I had to make changes to this organization, I would...
I really can't think of anything. Perhaps provide more NEI background, symptoms, research, etc. on the website.
Volunteer & I volunteer in MCWPA fundraising.