My Nonprofit Reviews
Review for Patient Alliance Neuroendocrineimmu Disorders Org For Resech & Adv Inc, Traverse City, MI, USA
I am a 66 yo healthy male with a 32 yo daughter with cfids and an old girlfriend who had it. I have two colleagues who culture fibroblasts who got it. I have a patient who litigated for 25 years over employee disability insurance. She had to give up in order to get an inadequate settlement. You can not fight a war with the walking wounded. You have to organize financially and politically and push for decades to get the awareness and funding for the research necessary to solve the problem. Patient advocacy groups link patients to the effort to do this. Join PANDORA and other groups and do your part.