October 3, 2010
The Fuchs friends group when an invaluable help to me when I first received my Dx of Fuchs Corneal Dystrophy (FCD). The provided written information and access to other web sites that helped me to understand that there are surgical techniques available to correct the disorder, and that I am not destined to be blind because of FCD. This group continues to give support and to identify corneal surgeons who perform the appropriate corneal surgeries.
The Great!
I've personally experienced the results of this organization in...
Yes.
Ways to make it better...
If I had to make changes to this organization, I would...
None
More feedback
What I've enjoyed the most about my experience with this nonprofit is...
The information they provide
The kinds of staff and volunteers that I met were...
Extremely helpful.
If this organization had 10 million bucks, it could...
Give scholarships to conferences for those of use who might find it difficult financially to attend.
Ways to make it better...
I like everything the way it is.
In my opinion, the biggest challenges facing this organization are...
Insufficient funding
One thing I'd also say is that...
I have not taken advantage of getting their reasonable priced DVDs from the conferences
How frequently have you been involved with the organization?
One time
When was your last experience with this nonprofit?
2010
MY ROLE:
Volunteer & Participate in fuchsfriends discussion group.