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mary-by-the-lake

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1 reviews

Review for The Corneal Dystrophy Foundation, San Jose, CA, USA

Rating: 5 stars  

when I was first diagnoised with fuchs corneal dystropy I was only told that I would go blind if I did not eventually have transplants. I was scared and felt very isolated as I didnt know of any one who had this problem. I attended my first fuchs friends gathering and saw a whole bunch of happy people who had transplants and they could SEE. It took away alot of my fear and as I attended more conferences I recieved alot of education and listened to some of the top specialists in the country. The corneal dystropy foundation is very important to all of us who participate and all those yet undiagnoised. sincerly Mary Oswald

What I've enjoyed the most about my experience with this nonprofit is...

going to the conferences..meeting others with Fuchs.

The kinds of staff and volunteers that I met were...

very professional, very helpful

If this organization had 10 million bucks, it could...

help people who do not have the funds to get the help they need.

Ways to make it better...

I liked when we use to take a picture of attendees holding up fingers for how many transplants.

How frequently have you been involved with the organization?

About every week

When was your last experience with this nonprofit?

2010

Role:  Client Served & I learned all about the best surgeon's in the country by attending the fuchs friends conferences.