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Diana

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1 reviews

Review for Myelin Repair Foundation, Saratoga, CA, USA

Rating: 5 stars  

Hello: I was diagnosed with MS on October 6, 2000. For the first couple of years I was everyone's guinea pig. No matter what was tried, I continued to get worse. I was truly a story of "diagnose and adios." Neither my doctors nor I knew what to do. I was scared. The only clinical trials I had read about were for people with early relapsing-remitting MS. I had already progressed to secondary progressive MS. It seemed there was no hope. Then, while doing MS research on the computer, I came across the Myelin Repair Foundation. I soon discovered there were others like me and others that actually cared about what happened to me. My new motto in life is, "for real hope, visit www.myelinrepair.org. Because the founder of this nonprofit also has MS, I feel he has a vested interest in the nonprofit's success and that makes me feel good. Be well. . .Diana

What I've enjoyed the most about my experience with this nonprofit is...

the positive energy that flows from everyone involved and makes things feel good.

The kinds of staff and volunteers that I met were...

Very educated people and very nice people but nonetheless they were people just like me, afflicted by this horrible disease.

If this organization had 10 million bucks, it could...

Be as wonderful as it already is. One of the wonderful things about this nonprofit is that it takes its time and charts its course forward.

Ways to make it better...

My experience could not have been better.

In my opinion, the biggest challenges facing this organization are...

The government of the United States of America.

One thing I'd also say is that...

These people are so human I feel like I've known them for a lifetime.

When was your last experience with this nonprofit?

2009

Role:  Volunteer & New England Fundraising.