My Nonprofit Reviews

curenf - charity reviews, charity ratings, best charities, best nonprofits, search nonprofits

curenf

241 profile views
1 reviews

Review for Children's Tumor Foundation, New York, NY, USA

Rating: 5 stars  

When our family first learned that our daughter (who was 4 months old at the time) had NF, we were overwhelmed. The internet had precious little accurate information about NF that was not sensationalized and we were emotionally drained after seeing what might possibly be her bleak future. However, we thankfully soon found that the best source of accurate and update information, and hope, was the Children's Tumor Foundation. From that day almost 10 years ago, we have found that this organization is not only aware of the most cutting edge research and scientific advances in the field, but are funding much of it through their various programs.

What I've enjoyed the most about my experience with this nonprofit is...

They are thankfully moving research closer to a cure by bringing the brightest minds in the scientific field together regularly through the annual NF Conference.

The kinds of staff and volunteers that I met were...

All excellent. A small staff that does the work of a very large organization.

If this organization had 10 million bucks, it could...

Fund all of the excellent research and science in the NF field (which benefits cancer research, heart disease, learning disabilities, and genetics) and increase public awareness of Neurofibromatosis (NF) in the general public.

When was your last experience with this nonprofit?

2010

Role:  Volunteer & I got involved in one of the Children's Tumor Foundation's national programs, the NF Endurance Team, and am now connected to many other NF families that have formed a very tight and supportive network.