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cindy17

238 profile views
1 reviews

Review for MLD Foundation, West Linn, OR, USA

Rating: 5 stars  

This group has made me feel supported and I no longer felt all alone in my journey with this disease. This online connection has been a powerful resource for a rare disease that has devastating effects on it's victims and families. Resources and information is crucial in diseases such as this one and the MLD foundation has done just that.

I've personally experienced the results of this organization in...

by receiving personal support and connections to medical and research persons throughout the world involved in working to cure this disease.

If this organization had 10 million bucks, it could...

work to more quickly cure MLD

How frequently have you been involved with the organization?

About every week

When was your last experience with this nonprofit?

2010

Role:  Client Served & I have attended conferences and participated in online discussion groups.