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sadie1

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1 reviews

Review for American Bladder Cancer Society Inc, Dalton, MA, USA

Rating: 5 stars  

Having been diagnosed in 2002 with invasive T2a bladder cancer after a very scary bout of gross hematuria i dutifully followed my local internists advise and went to my local urologist. My first transurethral resection was done locally before my brain cells had a chance to process "Bladder Cancer"..huh..? Who has ever heard of bladder cancer. My first process was to find the top cancer and urological centers in the US and go down their list of uro/surgeons who specialized in bladder cancer..not prostate cancer...or kidney stones......Bladder cancer. I found it a very limited field. By sheer dumb luck i was able to get in with one of the top surgeons at one of the top facilities in the country who did a second TURB on me. This has now become the norm as there is over a 50% chance that initial pathology is understaged. This started me on a journey of interviewing specialists in the field who dealt with women in particular. I have continued my research for the past 8 l/2 yrs and have found a home at ABLCS as it is a site based on informed data and not a Facebook site of bladder cancer. All answers are backed up with informative data. In addition our members are so very helpful to the newbie who we can all relate to as we've all been there. Its just a wonderful site, always improving, and links to all NCI centers and their urology departments. It made a difference for me and i hope i can pass that on to others.

What I've enjoyed the most about my experience with this nonprofit is...

seeing the success stories

The kinds of staff and volunteers that I met were...

outstanding

If this organization had 10 million bucks, it could...

Go for the CURE

Ways to make it better...

i didn't have so many tears for the ones that fought and lost.

In my opinion, the biggest challenges facing this organization are...

recognition and monies

One thing I'd also say is that...

thank you for a site with such integrity and honest sharing members.

How frequently have you been involved with the organization?

About every week

When was your last experience with this nonprofit?

2010

Role:  Volunteer & I was initially a patient seeking information and now i'm an advocate being 8 l/2 yrs out from a radical cystectomy.