My Nonprofit Reviews

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1 reviews

Review for Vhl Alliance, Boston, MA, USA

Rating: 5 stars  

Having a rare disease can be overwhelming! Because VHL is so unique, no one can really understand the questions and concerns you have. Finding the VHL family alliance was a godsend. From the great handbook which details all the testing, to the newsletters and bulletin board, it has all been a great help.

How frequently have you been involved with the organization?

About every week

When was your last experience with this nonprofit?


Role:  Client Served & I received life saving information on my rare disease.