My Nonprofit Reviews
Review for Vhl Alliance, Boston, MA, USA
Having a rare disease can be overwhelming! Because VHL is so unique, no one can really understand the questions and concerns you have. Finding the VHL family alliance was a godsend. From the great handbook which details all the testing, to the newsletters and bulletin board, it has all been a great help.
How frequently have you been involved with the organization?
About every week
When was your last experience with this nonprofit?