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Gluten Intolerance Group of North America
July 1, 2010

Three years ago when I was diagnosed with celiac disease, I was told by my dr. it is "a rare disease." Withiin a couple of months, the nearest chapter of GIG (90 miles away) found me due to an order for their restaurant guide. GIG will always be viewed as a lifeline to me - one that keeps newly diagnosed from drowning in the sea of information and that keeps the rest of us afloat and thriving.

The Great!

I've personally experienced the results of this organization in...

Education, awareness and support. There is always someone ready and capable to provide correct information.

Ways to make it better...

If I had to make changes to this organization, I would...

Add a marketing arm to publicize the the organization throughout the nation to enable additional celiac disease awareness and education to the population.

More feedback

What I've enjoyed the most about my experience with this nonprofit is...

Feeling confident that I have access to information that can literally save my life.

The kinds of staff and volunteers that I met were...

Branch Managers, general members, national officers and volunteers. All were exceedingly generousin sharing their expertise and knowledge.

If this organization had 10 million bucks, it could...

Change the face of health throughout the nation by enabling an awareness leading to diagnosis then education for the lifestyle. The playing field against the pharmaceutical industry could be slightly leveled.

Ways to make it better...

I lived closer to a metropolitan area with easier access or if GIG were large enough to reach into the rural areas.

In my opinion, the biggest challenges facing this organization are...

The shrinking volunteerism in America plus the lack of one standard body leading the celiac disease charge.

One thing I'd also say is that...

GIG ranks up there with American Heart Association, Diabetes Association, etc. relative to the value of information it provides. The National Executive Director, Cynthia Kupper, is extremely well credentialed and capable.

When was your last experience with this nonprofit?

2010

MY ROLE:
Volunteer & I am coordinating 70+ volunteers for an up-coming fund raiser.

Review from Guidestar