LUPUS FOUNDATION OF NORTHERN CALIFORNIA
June 30, 2010
When my sister, Sophia Lin's third child was born, she already didn't have enough time in the day. It was completely frustrating to try to pin down the different ailments that began to plague her, such as swollen glands, stiff fingers, constant fatigue and on on on while caring for a new born and his two siblings. Prescriptions, never ending concern, doctors, teaching hospitals were all added to my sister's already impossible schedule.
While we as her family loved and supported her there was little that we knew and understood.
Then one day, my sister was diagnosed with Lupus. This part of the journey led us to LFNC. A one stop resource that both patient and loved ones could learn from through current conversations, networking, professional research, invaluable peer support, and organized pro-activity to make a difference in a heretofore little known mystery disease.
I've personally experienced the results of this organization in...
Learning through the written resources and panels provided, having a sister who is much more confident in taking charge of her disease through her participation with LFNC.
What I've enjoyed the most about my experience with this nonprofit is...
knowledge and support
The kinds of staff and volunteers that I met were...
If this organization had 10 million bucks, it could...
go further with research and provide more outreach to Lupus Sufferers
How frequently have you been involved with the organization?
About once a year
When was your last experience with this nonprofit?
General Member of the Public & Family member of Lupus patient.