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emelina

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1 reviews

Review for DISCOVERY EYE FOUNDATION, Los Angeles, CA, USA

Rating: 5 stars  

When I was diagnosed with Keratoconus in 1998, I never heard of keratoconus before and had no idea what it was. Searching in the internet I found the NKCF. They not only answered my questions and concerns, but with the letter they send to my insurance I was able to obtain approval for payments of the office visits, treatment and contact lenses.Their newsletters keep me inform of the newest treatments and technological advances to treat keratoconus. which in turn i discussed with my doctor. The last contact lenses I made are using one of those cushion lenses and they are much more comfortable in addition to reduced the scars I had on one of my eyes while improving my vision.

What I've enjoyed the most about my experience with this nonprofit is...

The emotional support I receive while sharing with others our experiences and frustrations dealing with keratoconus.

The kinds of staff and volunteers that I met were...

Never met any staff member personally.

If this organization had 10 million bucks, it could...

Create awareness and provide treatments to many of us keratocounus patients.

Ways to make it better...

More doctors knew about this disease and were informed of the newest treatments available for these patients.

In my opinion, the biggest challenges facing this organization are...

that people not suffering of keratoconus lack of knowledge of its existance.

How frequently have you been involved with the organization?

About every six months

When was your last experience with this nonprofit?

2010

Role:  General Member of the Public & Search for information regarding keratoconus.