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princessofpee

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2 Reviews

What I want to do

Help people, especially women, recover from shy bladder syndrome

Walnut Creek, CA USA

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International Paruresis Association, Inc.
February 7, 2011

As someone who suffered from a severe case of shy bladder syndrome for 40+ years, I didn't know who else to turn to. All the professionals from whom I had sought help had failed me, and the people in my life, while supportive, didn't know what to say or do to relieve the constant and heightened anxiety I felt each time I entered a bathroom. My life had become increasingly limited because of my condition. Then, back in 1997, I discovered the IPA, then in its infancy stages. Suddenly I found others with my symptoms who commiserated and communicated. I went on to take two IPA-sponsored workshops, practiced the exercises that were taught to me there, and gradually recovered. As a result, I regained my life. What more could one ask? At the same time, I developed meaningful and longstanding friendships with many of those people who are either fellow sufferers of paruresis or equally dedicated to helping people recover from this debilitating condition.

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The Great!

I've personally experienced the results of this organization in...

Recovering from shy bladder syndrome was life-altering for me. Without the aid and support of members of the IPA, I don't think I would have overcome my condition. By feeling entitled to stay in a bathrooms stall for as along as I like, I felt empowered. I took new risks: I got married for the first time, became a step-grandmother, and wrote a book on shy bladder. I became a much stronger person, able to face new challenges that I had formerly avoided.

Ways to make it better...

If I had to make changes to this organization, I would...

Ensure the administrative and executive staff were properly compensated, hire or enlist the help of a fundraising professional to bring in needed revenue, increase public awareness of the shy bladder condition and the devastating effects it can have on its sufferers, continue to legislate for alternatives to urine testing in the workplace.

More feedback

Will you volunteer or donate to this organization beyond what is required of advisors?

Definitely

How much of an impact do you think this organization has?

Life-changing

Will you tell others about this organization?

Definitely

When was your last experience with this nonprofit?

2011

How did you learn about this organization?

Back in 1997, through a physician friend who showed me an article in a local newspaper that directed me to an Internet-based discussion forum on shy bladder

What is this organization's top short-term priority?

Increase revenue so as to fund specific initiatives

What is its top priority in the long run?

Hire a full-time CEO and financially support the organization in a way it deserves

MY ROLE:
Advisor & I felt so indebted to the IPA that I volunteered my time to help others, particularly women, recover from their urination anxiety. I have served as the IPA's Womens' Coordinator, wrote a book on the subject of women with shy bladder, co-moderated the IPA.

International Paruresis Association, Inc.
June 29, 2010

For more than 40 years, I suffered from a severe case of paruresis. Almost every waking moment my attention was focused on everyday rituals - the when, where, how, and whether I could urinate that day and the consequences of not being able to do so. As a result, I missed out on all kinds of life-affirming activities and opportunities. In short, my condition ran my life - it defined who I was to a large degree - and I felt very alone and isolated because of it. In 1997, I made a startling discovery that ultimately changed the course of my life: I located an Internet-based Discussion Forum (now operated by the IPA)through which I found others with many of my symptoms. I went on to enroll in two SBI workshops, at which I made tremendous progress; armed with new-found confidence and dedication, I continued to practice - over and over - many of the exercises I learned. Gradually I achieved a full recovery to the extent that paruresis no longer controls my life. Through extensive communication with other female paruretics over the years, I gained new insights about issues and behaviors that are unique to female paruretics - and went on to write and publish a book to help empower others in their journey towards leading a paruresis-free life. As a result of my recovery and my involvement in the IPA, my life has changed in many remarkable and unforeseen ways. When I look back on my life's accomplishments, overcoming paruresis is definitely at the top of my list. I am eternally grateful to the Shy Bladder Institute, its capable leaders, and its compassionate supporters, and I know I speak for countless others who have greatly benefited as I have.

The Great!

I've personally experienced the results of this organization in...

almost every facet of my life. With the help of the Shy Bladder Institute, I regained the life I lost due to the debilitating effects of shy bladder. Recovered, I have taken a lot of risks, grown in confidence, and increased my resolve to help others.

Ways to make it better...

If I had to make changes to this organization, I would...

Hire both a fundraising and marketing specialist to ensure the organization is properly financially supported and help to spread awareness of the shy bladder condition among the general public, especially women, and all health care professionals.

More feedback

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2011

MY ROLE:
Client Served & Attended two SBI workshops, became a Board Member, co-moderate the organization's Discussion Board, initiated a women's forum, wrote a book to help people (especially women) recover from shy bladder syndrome, now serve on the IPA Advisory Board, co-lead S.