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sf-kcpatient

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1 reviews

Review for DISCOVERY EYE FOUNDATION, Los Angeles, CA, USA

Rating: 5 stars  

When first diagnosed with keratoconus in 2003, I was scared and didn't know where to turn. Would my work possibilities dwindle? Could I drive at night? Would I lose my sight? NKCF provided comfort, resources, and hope. The newsletters and message boards provide everything from moral support to practical support (the best sunglasses for KC patients, ways to explain KC to others, travel for RGP lens wearers). I found my first KC specialist through NKCF and when my health coverage changed, they were there to help me locate a replacement. When I needed a letter that explained KC to my insurer, they were there. NKCF is professional and dedicated to our little-known diseases. I can't recommend them too highly.

What I've enjoyed the most about my experience with this nonprofit is...

access to the specialized resources that have a tangible effect on my life and ability to manage my eye disease.

The kinds of staff and volunteers that I met were...

friendly, professional, and clearly cared about their work and the patients it served.

If this organization had 10 million bucks, it could...

organize much-needed seminars and groups across the country, help fund critical research projects, expand its educational offerings, start a speakers' bureau, and create materials to help family members, employers, etc. understand corneal diseases.

How frequently have you been involved with the organization?

About every six months

When was your last experience with this nonprofit?

2010

Role:  Client Served & I received information and support from NKCF.