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LUPUS FOUNDATION OF NORTHERN CALIFORNIA
June 28, 2010

I have stayed up-to-date via the website and emails about Lupus. While I was informed that my childs chances of having Lupus were only slightly higher than the general public, it is good to be aware of signs and symptons. Her mother went undiagnosed for nearly 12 years because she would go in and out of remission.

The Great!

I've personally experienced the results of this organization in...

helping my daughter stay informed and she used the sight to write a term paper for school.

Ways to make it better...

If I had to make changes to this organization, I would...

hope they could get more recognition so more funds could be assigned/raised for the cause.

More feedback

What I've enjoyed the most about my experience with this nonprofit is...

continuity in growth and information.

The kinds of staff and volunteers that I met were...

friendly and supportive.

If this organization had 10 million bucks, it could...

do more public service announcements and raise more money for research. RECOGNITION and awareness needs to be heightened.

Ways to make it better...

they announced a cure AND a vaccination.

In my opinion, the biggest challenges facing this organization are...

funds and recognition.

One thing I'd also say is that...

I hold great hope that this disease shall become obsolete in my lifetime. I have lost several friends far too early in their lives.

How frequently have you been involved with the organization?

About every six months

When was your last experience with this nonprofit?

2010

MY ROLE:
General Member of the Public & I adopted a child whose mother had passed away from Lupus when the child was only 2.