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Review for NATIONAL TAY SACHS & ALLIED DISEASES ASSOCIATION INC, Boston, MA, USA

Rating: 5 stars  

I was diagnosed with adult, (now called late) onset Tay-Sachs Disease in 1982 due, to a blood test this organization caused to be developed. My membership continues since 1984. As a client, member, volunteer and now, ability to donate has increased, NTSAD has given my life direction for more than 25 years. I do not know where I would be without them. They continue to help thousands medically, emotionally, educationally and most, importantly, maintain their sanity.

What I've enjoyed the most about my experience with this nonprofit is...

Their universal support for individuals and families affected by these diseases regardless of age, race or national border is truly remarkable.

The kinds of staff and volunteers that I met were...

Always state-of-the-art knowledgeable as to causes, with the best support.

If this organization had 10 million bucks, it could...

Go a long way to help medical research in finding a cure for Tay-Sachs & the allied diseases.

Ways to make it better...

I can't think of a thing.

In my opinion, the biggest challenges facing this organization are...

The barriers to medical research, barriers to spreading medical knowledge and barriers to the education professional and lay people about these diseases.

One thing I'd also say is that...

Research into rare diseases, helps all diseases. Knowledge is needed if the future is to get better. Life in the 21 Century is so good.

How frequently have you been involved with the organization?

About every six months

When was your last experience with this nonprofit?

2010

Role:  Client Served & I am a member, a client, a volunteer and a donor.