June 30, 2010
There's something unique in receiving a diagnosis of a chronic illness, such as Parkinson's disease. In fact, PD is such a strange, complex and baffling disease that despite the many educational resources we can throw at it, each human's experience is so unique that the most common word I've heard to describe PD is "baffling." The Parkinson Support Center of Kentuckiana is in a class by itself. The informal motto "No one has to face Parkinson's alone" is bolstered by an incredible base of volunteers, staff and board members who uniquely understands *just* what those words mean. Facing grief, facing physical and sometimes cognitive impairment, facing conflicting information...PSCKY stands firm in ensuring that the person with PD (or someone who is a family member or friend) does not have to face that baffling road alone. The support groups, educational events, movement groups and information and personal counseling offered by PSCKY are extraordinary and infused with a personal concern, care and candor that bring light and hope to a diagnosis that can often be overwhelming.
I've personally experienced the results of this organization in...
Day to day observance of the results this organization has achieved.
How frequently have you been involved with the organization?
About every week
When was your last experience with this nonprofit?
MY ROLE:Former staff & Helped PSCKY expand programs and services to over 45 counties in KY and IN.