June 25, 2010
Dr Soifer and his dedicated group of professionals, people with paruresis and theirsupporters have spearheaded an amazing international effort, selflessly building the organization with countless unpaid hours of work. In a few short years they have reached many thousands of people who had previously suffered alone and in shame from a treatable and surprisingly common ailment. They have had drug enforcement laws changed, advocated for bathroom re-design, supported efforts at improving biological and psychological treatments and worked non-stop at getting the word out into the general public. They have provided direct care to patients around the world. ALl this has been done on a shoestring , with virtually no paid staff, no money and a lot of volunteer help.
I've personally experienced the results of this organization in...
listening to lives changed by informtion and treatment
How frequently have you been involved with the organization?
About every six months
When was your last experience with this nonprofit?
MY ROLE:Professional with expertise in this field & I was part of the original group of professionals who supported the formation of this organization .