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mmolnar

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1 reviews

Review for Miracle Flights for Kids, Green Valley, NV, USA

Rating: 5 stars  

My son (2 years 6 months) was born with multiple Lymphangioma’s (vascular tumors); which are located behind his left eye, the tip and side of his nose, and side of his face. He was misdiagnosed from birth until 18 months of age. We have seen many doctors and specialists and until August 2009 they were not able to confirm what the lesions were. The Lymphangioma that is wrapped around Brogan’s optic nerve has caused him to lose most of his vision in his left eye. Because of this, he has had glasses since he was five weeks old. If not treated, the lesions will grow as Brogan grows and cause more health issues. By a miracle we located a group of Endovascular surgeons in New York that have been treating Brogan with Sclero Therapy treatments since August 2009. The doctors still do not have a time frame or a number of procedures left before the Lymphangioma’s are diminished. Brogan is reacting very well to the treatments and they plan to continue with them until he is not. We will be making our fifth trip to New York City on June 17, 2010 for another treatment (five trips in ten months). We are extremely excited for Brogan and will do whatever it takes to get him the help that he needs. Miracle Flights for Kids has helped us tremendously in the past. We would not have been able to help Brogan without this support and feel very blessed!

What I've enjoyed the most about my experience with this nonprofit is...

They are very reliable.

The kinds of staff and volunteers that I met were...

I have not met any of the staff, but I have spoke with them many times on the phone. Always very kind and understanding.

If this organization had 10 million bucks, it could...

Help a lot of ill people and families get the help that they need.

Ways to make it better...

I understand the need of all the forms, however for a parent trying to make all sorts of arraignments. It is very difficult to get a prompt response from the Doctors for the two letters needed and form filled out.

In my opinion, the biggest challenges facing this organization are...

The high demand for medical flights to the number of frequent flyer miles donated.

One thing I'd also say is that...

I have met other families that have used Miracle Flights and they also have a similar situation and are very blessed to get the assistance from this service.

How frequently have you been involved with the organization?

About every six months

When was your last experience with this nonprofit?

2010

Role:  Client Served & I flew with my son to NY from NE for treatment.