GreatNonprofits: Find non-profits and charities to review, donate, or volunteer.

Oops! You must enter a search term greater than 3 characters.

ksoto

ksoto - charity reviews, charity ratings, best charities, best nonprofits, search nonprofits
479 Profile Views
3 Reviews

What I want to do

I want to find a balance between my lupus and life

What matters to me

Helping others reach a better quality of life matters to me

What inspires me

The will of people to survive and keep going

Sunnyvale, CA USA

Login to send private message
Click here to get your favorites badge.
LUPUS FOUNDATION OF NORTHERN CALIFORNIA
April 23, 2013

Lupus Foundation of No. California has been there for me through my most difficult moments dealing with Lupus. They keep me informed about what is out there for me to help me have a better quality of life. They are there for me when I question if I can fight the fight anymore. Having a chronic illness is a very lonely place but they make sure you are not alone. I think if they had the money they would have a bigger space for a wellness center for services as well. They are committed to service and helping those of us with autoimmune issues. I would be lost without them

More feedback

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2013

MY ROLE:
Client Served

LUPUS FOUNDATION OF NORTHERN CALIFORNIA
July 30, 2012

I have Lupus and many times the foundations has provided me with support. This summer then sent me sunscreen just in time for camping and I hadn't gone camping in over 10 years. I was safe and confident after a talk with with them. They will never let someone be left in the dark about autoimmune issues. They are the light that gets us through and they ask us for nothing but what we can give at the time. Sometimes that is going in and stuffing envelopes and its a blast! They are a great team.

More feedback

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2012

MY ROLE:
Client Served

LUPUS FOUNDATION OF NORTHERN CALIFORNIA
June 24, 2010

I received my diagnosis in 1995 and as time went on things just kept changing. You have a little of this and a little of that with a touch of this. I felt like one of my grandmothers old receipes. I turned to the foundation for assitance in understanding what the heck this disease was doing to me and what else to expect. They gave me the tools to try and help my family understand what kind of disease this really is and how it was weakening my body. They also gave me all the info on the new drugs so I could find the right treatment and assistance plans so I could get help to pay for them. They never let me down when I needed them. I am not a diagnosis I am a person with a name. Kathleen Soto of San Jose Ca 44 yrs old

The Great!

I've personally experienced the results of this organization in...

The new drug information and presenting it to my doctor in order to start Rituxan for a better treatment. Watching the Bylsta data now

More feedback

What I've enjoyed the most about my experience with this nonprofit is...

The are always eager to help and always have an answer.

The kinds of staff and volunteers that I met were...

were very informative and compassionate.

If this organization had 10 million bucks, it could...

Help so many people and reach those who are to shy to call

How frequently have you been involved with the organization?

About every month

When was your last experience with this nonprofit?

2010

MY ROLE:
Client Served & I have Systemic Lupus.