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notus2

168 profile views
1 reviews

Review for MLD Foundation, West Linn, OR, USA

Rating: 5 stars  

My family has suffered through two diagnoses of MLD. This site has been an invaluable resource for our families. This site covers everything from Support Groups and Learning Libraries, to current Global Research and Clinical Trials. It truly is a One-Stop for everything MLD!

I've personally experienced the results of this organization in...

Support Groups, Links to expert Medical Personnel, current Clinical Trial enrollments, Learning material and videos

What I've enjoyed the most about my experience with this nonprofit is...

Family connections. Knowing you're not alone is priceless.

The kinds of staff and volunteers that I met were...

amazing!

If this organization had 10 million bucks, it could...

potentially find a cure.

How frequently have you been involved with the organization?

About every week

When was your last experience with this nonprofit?

2010

Role:  Client Served & donations.