American Bladder Cancer Society Inc
June 21, 2010
I was diagnosed with bladder cancer this past March. After the initial shock began to wear off, I frantically began to surf the web looking for information. The more I looked, the more confused and frustrated I became. The problem was that when I found information, there was no means of asking questions (abstracts don't talk back). I did find a few sites that provided a means to post questions, but when I examined the "latest" post indicaters, I found that most were several months and even years old. Some were just vehicles for individuals to maintain a diary and no means to exchange information. Then I found the site for the American Bladder Cancer Society. I found that the site was up to date ("latest posts" were defined in hours and minutes rather than months or years), arranged in an easy to use manner, and easy to use.
The greatest asset of the ABLCS site is the exchange of information. You are quickly surrounded by peope coping with the same disease and the lifestyle issues that it entails. The folks on the various threads are truly amazing. Questions are responded to quickly and always with words of hope and encouragement. For people like me that require more than "I heard somewhere that ...." the people that respond will back up what they are telling you with links to support the information. When it comes to questions of the "what should I be looking for" or "what should I be doing at this point", you can expect to get reliable information and. if needed, a push to help you to get moving in the right direction.
For anyone that has been diagnosed with bladder cancer or the loved ones of someone diagnosed with bladder cancer, I highly recommend the American Bladder Cancer Society website and I suggest frequent review and participation in the conversations. I can attest that it has been a major factor in my personal ability to cope and find my direction at a very critical time in my life.
I've personally experienced the results of this organization in...
American Bladder Cancer Society website and the people involved help me to understand the disease, learning the terminology,identify leading physicians and cancer centers, and assist in developing a plan to deal with the disease.
Ways to make it better...
If I had to make changes to this organization, I would...
The major change neede for American Bladder Cancer Society is funding to make this disease more visible to the general public. A greater awarness is needed.
What I've enjoyed the most about my experience with this nonprofit is...
the knowledge level of those involved and the obvious degree of caring and support shown by everyone.
The kinds of staff and volunteers that I met were...
only online, but through my communications with them, it is my belief that true commitment and concern flow throughout the organization.
If this organization had 10 million bucks, it could...
potentially save untold numbers of lives and bring a very deadly killer out into the light of day from its current position of obscurity. Money makes things happen.
Ways to make it better...
I had been aware of the organization from the start.
In my opinion, the biggest challenges facing this organization are...
increasing the level of awarness and turning that awarness into dollars for research, information, care and treatment.
One thing I'd also say is that...
if more people were aware of the frequency of bladder cancer and the deadliness of the disease, I have no doubt that funding to advance the fight for a cure would be much greater.
How frequently have you been involved with the organization?
About every week
When was your last experience with this nonprofit?
General Member of the Public & I was looking for information and help after being diagnosed with bladder cancer.