June 20, 2010
My brother was dx'd with Bladder Cancer 2003. While searching for information (since we had never heard of bladder cancer) I came across the website. I immediately sent the link to my brother, and did some reading myself. Little did I know that I would need this website myself in 2006. Since my brother had history with bladder cancer and was treated for an infection instead of a cysto (for 12 months), at the first sign of blood, I went to the ER. (it was Sat.) Thank heavens the attending Dr. did a scan and spotted the tumors. Monday I went to a Urologist, confirmed what the ER found on Tues. had a TURB. Nobody I have spoken to - neighbors, friends etc. even have heard of Bladder Cancer. Because mine was found early I was treated with BCG (used the last 50 yrs.) and still have my bladder. My brother had to have a Neo bladder, however he is doing well. At this time, due to very little money given for research of bladder cancer, doctors still insist it does not run in families. Plus the fact all the people that don't even know they have the desease and are walking around with it instead of getting treated and perhaps saving their bladder and life. This website in all volunteer, and the education and emotional help I have received from American Bladder Cancer Society, Inc had helped me find the right doctors and heal emotionally, and actually is still helping me on a day to day basis.
I've personally experienced the results of this organization in...
so many ways......as stated above - critical decisions and emotionally.
How frequently have you been involved with the organization?
About every week
When was your last experience with this nonprofit?
MY ROLE:Volunteer & I have referred this organization to other patients.