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lorirk

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1 reviews

Review for American Bladder Cancer Society Inc, Dalton, MA, USA

Rating: 5 stars  

When I was diagnosised with bladder cancer in Feb. 2010 I didn't know where to turn. My local urologist had limited information as they mainly treat kidney stones and the like and offered no support. I was scared and needed answers that would affect my life and I needed them quick. I turned to the internet and came across American Bladder Cancer Society. I wrote on their site and immediatly I recieved responses from others with bladder cancer. They all gave me the best peice of information I could have expected and that was to seek a second opinion at a hospital that does more than 100 RC a year. They even went so far as to provide a list of doctors from all over the United States. I picked a doctor associated with UNC and have been to him for treatment and have had a one surgery by him too. I feel in very good hands and I owe it all to American Bladder Cancer Society. Without them I may not get the care and treatment that is required to live.

What I've enjoyed the most about my experience with this nonprofit is...

Their expertise. The list of doctors they have complied is a Godsend. If I had to find a doctor that had the experience I needed I don't know how long it would have taken.

The kinds of staff and volunteers that I met were...

I have only had contact via the internet and they have always been curtious and knowledgable.

If this organization had 10 million bucks, it could...

Spread the word about bladder cancer. It could possible come up with a test for early stage diagnosis. Now, by the time you see the symptoms, you already have cancer. Plus they could take away the stigma of bladder cancer.

Ways to make it better...

My experience was fine.

In my opinion, the biggest challenges facing this organization are...

Funding.

One thing I'd also say is that...

Bladder cancer is the most expensive cancer to treat on a per person basis. There are 70,000 new cases each year and has a very high rate of recurrence (50 - 70%). We need money and support for Bladder Cancer now.

How frequently have you been involved with the organization?

About every week

When was your last experience with this nonprofit?

2010

Role:  Client Served & Given information on bladder cancer that I could not find elsewhere.