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macmurray

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1 reviews

Review for MLD FOUNDATION, West Linn, OR, USA

Rating: 5 stars  

'TAKE YOUR CHILD HOME AND KEEP THEM COMFORTABLE' THERE IS NO TREATMENT - THERE IS NO CURE. The MLD Foundation has given us a 'place' and a sounding board...to grieve...to ask questions even the 'best' doctors do not have answers for...they are a grieving family having TWO affected children - one who is in heaven now and one still battling this horrid disease - and have started a foundation to help all of us come together and try to make the best life for our affected kids. MLD may be 'rare'...but awareness and love are steps to helping our kids - and the MLD Foundation provides BOTH and more.

What I've enjoyed the most about my experience with this nonprofit is...

We're a family - a small, rare, family.

The kinds of staff and volunteers that I met were...

Nothing short of amazing.

If this organization had 10 million bucks, it could...

Help find a cure.

How frequently have you been involved with the organization?

About every week

When was your last experience with this nonprofit?

2010

Role:  Client Served & Mom to an MLD child.